Comparing Differences in Support Needs as Perceived by Parents of Adult Offspring with Down Syndrome, Autism Spectrum Disorder and Cerebral Palsy

Autor/inn/en	Lee, Chung eun; Burke, Meghan M.; Arnold, Catherine K.; Owen, Aleksa
Titel	Comparing Differences in Support Needs as Perceived by Parents of Adult Offspring with Down Syndrome, Autism Spectrum Disorder and Cerebral Palsy
Quelle	In: Journal of Applied Research in Intellectual Disabilities, 32 (2019) 1, S.194-205 (12 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Lee, Chung eun) ORCID (Burke, Meghan M.)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1360-2322
DOI	10.1111/jar.12521
Schlagwörter	Barriers; Down Syndrome; Adults; Autism; Pervasive Developmental Disorders; Cerebral Palsy; Intellectual Disability; Developmental Disabilities; Parents; Recreational Activities; Needs + Suchen Sie Ihr Suchwort? 'Downs Syndrome; Down''s Syndrome'; Down-Syndrom; Autismus; Hirnlähmung; Intellect; Disability; Disabilities; Verstand; Behinderung; Entwicklungsstörung; Eltern; Freizeitgestaltung; Grundbedürfnis
Abstract	Background: Parents often face many barriers when taking care of their offspring with disabilities. In childhood, support needs vary with families of children with Down syndrome often reporting less caregiving challenges. However, it is unclear whether support needs vary in adulthood. This study compared parents of adults with Down syndrome (DS), autism spectrum disorder (ASD) and cerebral palsy (CP) regarding support needs of their offspring with intellectual and developmental disabilities (IDD) and their families. Method: Data were collected via a national survey in the United States with 189 parents of adults with IDD. Results: Across the quantitative and qualitative analyses, parents of adults with DS (versus CP and ASD) reported significantly greater recreational, natural supports, more formal services and less future planning barriers. Conclusion: The results indicate that the DS advantage may persist in adulthood regarding support needs. More research is needed to understand different types of support needs. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01